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Céline Dion Talks of Struggle with Stiff Person Syndrome

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Home Entertainment

Céline Dion Talks of Struggle with Stiff Person Syndrome

by Sandra Rhodes
June 7, 2024 at 11:00 am
in Entertainment, FaithTap, News
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Céline Dion Talks of Struggle with Stiff Person Syndrome

LOS ANGELES, CALIFORNIA - FEBRUARY 04: Celine Dion speaks onstage during the 66th GRAMMY Awards at Crypto.com Arena on February 04, 2024 in Los Angeles, California. (Photo by Kevin Winter/Getty Images for The Recording Academy)

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When singer Céline Dion tries to sing, it feels “like somebody is strangling you.” 

That’s how Dion has described her physical condition since having stiff person syndrome.

Dion spoke exclusively with NBC’s Hoda Kotb in an interview that will be aired at 10 p.m. ET Tuesday on NBC.

EXCLUSIVE: In an interview with TODAY’s Hoda Kotb, Céline Dion is shedding light on her health and how seriously her stiff person syndrome has affected her ability to sing.

Céline Dion's full conversation with Hoda will air on June 11 on @NBC. pic.twitter.com/kvsVX8ZjDt

— TODAY (@TODAYshow) June 7, 2024

“It’s like someone is pushing your larynx, pharynx,” she said. “And you can’t go high or lower. It gets into a spasm.”

But her voice was just one part that is affected.

The spasms she’s endured  have also broken ribs, she said. 

It also shows up in the abdomen, spine, feet and hands.

In the interview preview, she specifically spoke of her hands and feet, which get in “a position of, like, you cannot unlock them.”

Dion announced her diagnosis in December 2022, per NBC News.

She ended up canceling her European tour in 2023, due to health issues.

The rare disease causes people to have rigid torso and limbs and severe muscle spasms. 

The spasms can be random or can be set off by loud noises and emotional distress.

In February, Dion received a standing ovation at the Grammys when she present the album of the year award.

After showing a brief clip of a concert Dion gave at the plaza years ago, Kotb said Dion was struggling then.

“As far back as 2016, Céline knew there was something wrong with her physically, but she didn’t know what it was,” Kotb said.

Tags: Celine DionHoda KotbStiff-Person Syndrome
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Sandra Rhodes

Sandra Rhodes

IJR, Contributor Writer She was a Story Editor for Indpendent Journal Review since November 2022 and has written for IJR since February 2024. She has been in the newspaper business in various capacities since 1998.

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