When singer CĂ©line Dion tries to sing, it feels âlike somebody is strangling you.â
Thatâs how Dion has described her physical condition since having stiff person syndrome.
Dion spoke exclusively with NBCâs Hoda Kotb in an interview that will be aired at 10 p.m. ET Tuesday on NBC.
âItâs like someone is pushing your larynx, pharynx,â she said. âAnd you canât go high or lower. It gets into a spasm.â
But her voice was just one part that is affected.
The spasms sheâs endured have also broken ribs, she said.
It also shows up in the abdomen, spine, feet and hands.
In the interview preview, she specifically spoke of her hands and feet, which get in âa position of, like, you cannot unlock them.â
Dion announced her diagnosis in December 2022, per NBC News.
She ended up canceling her European tour in 2023, due to health issues.
The rare disease causes people to have rigid torso and limbs and severe muscle spasms.
The spasms can be random or can be set off by loud noises and emotional distress.
In February, Dion received a standing ovationat the Grammys when she present the album of the year award.
After showing a brief clip of a concert Dion gave at the plaza years ago, Kotb said Dion was struggling then.
âAs far back as 2016, CĂ©line knew there was something wrong with her physically, but she didnât know what it was,â Kotb said.
